Disease Monitoring Programs
Disease Monitoring Programs (DMPs) are a novel approach to collect data on a global, broad population of individuals living with a rare disease, whether treated – via commercial access to a medicine – or not. DMPs go beyond clinical trials by enhancing the understanding of the disease and its treatments, while addressing the need to examine treatments and patients in a long-term study. DMPs collect data that are useful to healthcare providers, patients and regulatory agencies. DMPs help us better understand rare diseases and how to treat them.
DMP data sharing: How DMPs improve transparency
At Ultragenyx, DMPs are committed to transparency of data which provides a value to the medical community. Stakeholders interested to access DMP data may submit a request to Ultragenyx by completing the DMP Data Sharing Request Form.
For DMP information, contact us here.
